Get ready, because October 2013 is the first Global Dysautonomia Awareness Month! Awareness events are being hosted by Dysautonomia International and other dysautonomia related organizations around the globe during the month of October.
Check out the Interactive Global Dysautonomia Map to see if there an October awareness event near you.
If you don't see an event listed for you area, consider starting your own. It doesn't have to be a big fancy event. It can just be a small "POTS Luck" dinner or a backyard BBQ, a Halloween party at your friend's house or if you have friends who run 5k races (very common in October), you can ask them to run for "Team Tachy." The purpose of these events is to raise awareness, so be sure to invite people who don't already know about dysautonomia. Print out educational brochures or information from the Dysautonomia International website and hand it out at the event.
If you decide to throw your own event, contact events@dysautonomiainternational.org so they can list your event on their global map. They can also help get your press coverage from your local newspapers.
Check out the Interactive Global Dysautonomia Map to see if there an October awareness event near you.
If you don't see an event listed for you area, consider starting your own. It doesn't have to be a big fancy event. It can just be a small "POTS Luck" dinner or a backyard BBQ, a Halloween party at your friend's house or if you have friends who run 5k races (very common in October), you can ask them to run for "Team Tachy." The purpose of these events is to raise awareness, so be sure to invite people who don't already know about dysautonomia. Print out educational brochures or information from the Dysautonomia International website and hand it out at the event.
If you decide to throw your own event, contact events@dysautonomiainternational.org so they can list your event on their global map. They can also help get your press coverage from your local newspapers.
Just curious...is it October 2013 or 2012? I'm just so excited...hoping I don't have to wait another year for Global Dysautonomia Awareness Month!!
ReplyDelete- Lindsay (from CA Potsies FB group)
Hi Lindsay,
DeleteIt's October 2012, 2013 and every year thereafter. October 2012 is the first time we are doing this, but we want it to grow each year to include more cities and more people.
Checkin with Amy Krakower about this year's California event.