VOLUNTEER FOR POTS RESEARCH STUDIES

There are always doctors and medical school professors doing research on POTS and related issues, such as dysautonomia, orthostatic intolerance, tachycardia, Chronic Fatigue Syndrome, etc.  Not all of the studies require that you go to the actual research center - some can be done from home or with the participation of your local doctor.  Here are a few links to sites that list current research trials related to POTS:


The Vanderbilt Autonomic Dysfunction Center at Vanderbilt University School of Medicine in Tennessee.


The Center for Hypotension run by Dr. Julian Stewart at New York Medical College in Valhalla, NY.


The Institute for Exercise and Environmental Medicine has ongoing medical trials, some of which relate to POTS and Orthostatic Intolerance.  Also, Dr. Benjamin Levine and his team at the IEEE have started an international POTS Registry to better track and understand POTS in the long term.  You can join their Registry for free with the help of your local doctor.  You do not have to visit their office in Dallas, Texas to be part of the Registry, but they do see patients if you live in the area.  If you join the Registry, they will also provide your local doctor a specific POTS exercise protocol, and they ask that you do a 10 minute standing test before and after several months of the exercise program.  This will help them better understand what impact exercise can have on POTS.  They did a controlled study at their Texas lab, and found that MANY of the POTSies who completed the exercise protocol were significantly improved - some did not even meet the criteria for a POTS diagnosis by the time they were done.  This is wonderful, so I am in the process of signing up for this Registry and exercise protocol with my local doctor's assistance.  If you are interested in the Registry or the Exercise Protocol, have your local doctor call, e-mail or fax a note to Dr. Levine's team and they will send over the Registry application paperwork to your doctor. Their contact info is:

RE: POTS Treatment

The Institute for Exercise and Environmental Medicine
7232 Greenville Avenue, Suite 435
Dallas, TX 75231
Ph: 214-345-4607
Fax: 214-345-4618
E-mail: THR-IEEM-POTSRegistry@texashealth.org

ClinicalTrials.gov is a page run by the U.S. National Institute of Health that lists current POTS related research trials.


The American Autonomic Society lists autonomic related clinical trials from around the world.  Go to their main page and click on "Ongoing Clinical Studies" on the left side of the page.


The Mayo Clinic has a Clinical Trials website.  Enter "orthostatic" or "autonomic" or "postural" into the search bar on the Clinic Trials page, and you will see current research related to those topics.


If you are aware of additional POTS related clinical trials, please post a comment about them below.