Dec 23, 2011

All I Want for Christmas Is A Christmas Miracle

To my POTS friends, I am praying for a Christmas Miracle for all of you.  I want you healed.

I want you walking around, feeling great, seeing straight, having energy, breathing freely and eating whatever holiday junk food puts a big smile on your face.  I want you to be able to hike the highest mountain, dive the deepest sea and fly long distance without needing a reclined seat.  I want you to be able to walk down the aisle of a grocery store and not space out from the flickering flourescent lights.  I want you to be able to drive.  I want you to have a New Year with no doctors appointments, no ER visits, no surgeries, no co-pays, no deductibles, no out-of-network coverage denials, no annoying new patient intake forms, no frustrating paperwork battles with the insurance company, no having to learn your diagnosis codes, no biopsies, no needles, no tubes, no experimenting with new meds and no side effects.  I want you to not have to learn to love pickle juice!

When you are young, I want you to run around and bounce off the walls like all of the other kids your age.  Then I want you to dance at your prom, with a really hot date.  I want you to be able to walk across the stage at your college graduation, without worrying about your blood pressure.  I want you to be able to walk down the aisle at your wedding and stand throughout the whole ceremony - even those 2 hour Catholic masses.  I want you to be able to have babies, lots of them, and not worry about whether that will make your POTS return, or whether your children will have POTS someday.  I want you to be able to work in a career that brings you fulfillment, joy and a solid income.  I want you to be able to retire and travel the world.  I want you to live a long healthy life in which you get to do everything you ever dreamed of.

And while I am on a roll here, I want more doctors that know how to recognize and diagnose POTS.  I want more scientists researching the causes of POTS, and a cure for each cause.  I want more doctors who "get it."  I want fewer doctors telling young women it's all in their head and that they look fine.  I want more POTS patients to become doctors - we need some really smart autoimmune neurologists with a keen interest in genetics, endocrinology and cardiology!

Most importantly, I want you all to be happy.

Here's to hoping all of my wishes and and all of yours will be granted in 2012!  Merry Christmas!


  1. Love you girl !!! Thank you and the same to YOU !!!!

  2. Thank you for this! I wish all the same for you!!! I hafta ask - what's with the pickle juice? Oh and I love seeing another grrl (I use that all the time :)

    Blessings to you from Orlando.

  3. Pickle juice is VERY salty and has lots of electrolytes in it. Many POTS patients drink pickle juice when they are having very low blood pressure, because it increases your blood pressure. There is even a company that sells pickle juice meant for drinking. And one of my POTS friends posted a recipe for pickle juice sorbet/ice cream. I make my own pickles from cucumbers and dil I grow and I always drink the juice when we are finished with the pickles.

  4. Lauren.. Thank you. And I wish all the same for you! Here is hoping that 2012 will have a cure for POTsies and that all of us effected will be healed. Patient and family! Love you! And thank you for this!

  5. Hi,
    You have a great blog! I found it while researching POTS before I was diagnosed. I actually just got diagnosed last week with Neurocardiogenic syncope. Anyway, I was wondering if there is a way I can privately message you. I know in one of your previous posts you mentioned something about private support groups on facebook, and I'm interested in finding out more about that. Thank you!

  6. You can privately message me at I will explain how you can link into the private Facebook support groups for POTS. We have other patients with Neurocardiogenic Syncope, as it is virtually identical to POTS with maybe a little less tachycardia. I was diagnosed with NCS before my doctors changed their minds and said it was POTS.

    Also, check out my latest blog post. I am launching a free monthly Skype conference call open to all POTS patients. Details will be in the next blog post. :)