Dysautonomia International is hosting the 2013 Dysautonomia Patient Conference & Lobby Day, and you're all invited! The conference will be held in Washington, D.C. from July 6th-8th.
The conference is shaping up to be a fun-filled, educational weekend for dysautonomia patients and their families. The event is meant for people with all different autonomic disorders, of any age. Dysautonomia International is flying in top autonomic experts from around the country to present interesting and information presentations on various topics related to dysautonomia. Planned topics so far include:
Overview of Primary Autonomic Disorders & Research Update
Gastrointestinal and Nutritional Issues for Autonomic Patients
EDS, RSD & Pain Disorders
Physiology of POTS
Secondary Autonomic Dysfunction
Exercise & Physical Therapy for Autonomic Disorders
Coping with Chronic Illness: How to Live Your Best Life
Legal & Financial Issues for the Dysautonomia Patient
Caregiver Q & A Session
Patient Q & A Session
Youth Led Breakout Session
Lobby Day Training Session
Additional topics will be added as speakers confirm.
Plenty of social activities are planned throughout the weekend as well, including a round of Dysautonomia Jeopardy, a Gala Dinner, a Silent Auction, a vendor fair, and a pool party. On Monday the 8th, conference attendees can take a charter bus to Capitol Hill, to lobby their elected officials on matters important to the dysautonomia community. For complete details on the conference, please visit www.dysautonomiainternational.org/2013conference.
Even if you can't attend in person, there are ways you can be involved in the conference and help make it a success. They need volunteers for several important conference related projects, and most of the volunteering can be done from home. Check out the Conference Volunteers page for details.
I will be there for sure. Hope to see you all there!
The conference is shaping up to be a fun-filled, educational weekend for dysautonomia patients and their families. The event is meant for people with all different autonomic disorders, of any age. Dysautonomia International is flying in top autonomic experts from around the country to present interesting and information presentations on various topics related to dysautonomia. Planned topics so far include:
Overview of Primary Autonomic Disorders & Research Update
Gastrointestinal and Nutritional Issues for Autonomic Patients
EDS, RSD & Pain Disorders
Physiology of POTS
Secondary Autonomic Dysfunction
Exercise & Physical Therapy for Autonomic Disorders
Coping with Chronic Illness: How to Live Your Best Life
Legal & Financial Issues for the Dysautonomia Patient
Caregiver Q & A Session
Patient Q & A Session
Youth Led Breakout Session
Lobby Day Training Session
Additional topics will be added as speakers confirm.
Plenty of social activities are planned throughout the weekend as well, including a round of Dysautonomia Jeopardy, a Gala Dinner, a Silent Auction, a vendor fair, and a pool party. On Monday the 8th, conference attendees can take a charter bus to Capitol Hill, to lobby their elected officials on matters important to the dysautonomia community. For complete details on the conference, please visit www.dysautonomiainternational.org/2013conference.
Even if you can't attend in person, there are ways you can be involved in the conference and help make it a success. They need volunteers for several important conference related projects, and most of the volunteering can be done from home. Check out the Conference Volunteers page for details.
I will be there for sure. Hope to see you all there!