tag:blogger.com,1999:blog-7647112008052174649.post664486269921309827..comments2024-02-24T20:45:18.066-05:00Comments on POTSgrrl: Coping With POTSUnknownnoreply@blogger.comBlogger8125tag:blogger.com,1999:blog-7647112008052174649.post-46199370639919650802013-12-26T15:45:51.352-05:002013-12-26T15:45:51.352-05:00This has been really helpful to me also. I am a 28...This has been really helpful to me also. I am a 28 year old mom of two and I have just been diagnosed with POTS. I also have disc degeneration and am having trouble with symptoms here lately. Anyone that has more experience with this condition any advise is helpful. ThanksAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7647112008052174649.post-78779041343476452272013-12-23T03:50:05.698-05:002013-12-23T03:50:05.698-05:00What do you reccomend for dealing with attending s...What do you reccomend for dealing with attending school and having POTS my school has a no book bag policy and it two stories. My mom really wants me to go back to school as I'm on homebound now but I dont know if that's possible any more. (Recently diagnosed with POTS as of a month)<br />Jesshttps://www.blogger.com/profile/12394659980565084634noreply@blogger.comtag:blogger.com,1999:blog-7647112008052174649.post-73425871038002624902013-12-04T20:57:11.278-05:002013-12-04T20:57:11.278-05:00What a great article! I personally do not have POT...What a great article! I personally do not have POTS or OI, but I try to stay informed because I have a friend who has POTS. Her blood pressure sometimes goes haywire, her heart rate can go up to 200 bpm, and my question for you is, what can I do to help? That is, should the situation arise, how can I be prepared to help? Oh, she also has heart palpitations almost constantly.Is there anything I can keep with me that would help her if her blood pressure were to shoot up (normally she just "toughs it out") or anything? Any information you have would be helpful. Lately, I've tried to make it a point to keep a salty snack on hand, but that's all I've got. You should also know that she is under a lot of stress for various reasons, and that she is a very positive, busy person.Anonymoushttps://www.blogger.com/profile/17454868944616329224noreply@blogger.comtag:blogger.com,1999:blog-7647112008052174649.post-36629166563726404072013-11-09T22:47:51.848-05:002013-11-09T22:47:51.848-05:00I have been struggling for a year now with mind fo...I have been struggling for a year now with mind fog and have been trying to figure out what is happening to me. I flew back from st maarten from a vacation sept 2012. I had fun on vacation, drank lots of booze, relaxed, had a great time. But once I stopped drinking and flew home.. I felt horrible for two days. Not like hungover horrible, but like DTs, shaking, rapid heartbeats, dizziness.. and mind fog. The mind fog has never gone away. I went to my doctor within a few months to figure out why I was feeling so detached from my surroundings, i just feel so out of it. I do things without thinking and then sometimes dont remember doing them. Its horrible. My PCP tested me for Lyme, STDs, anemia, cbc, thyroid, liver fxn, kidney fxn, nutrient deficiencies.. and the only thing they found not normal/negative was both vit D and B12 were low. Doc put me on supplements.. still didnt make me feel better. I was convinced I had lyme disease because I was constantly tired, I would get random heart palpaltations, I felt lighthead and dizzy, I randomly sweat for no reason, ringing in my ears, sensitive to light and sound.. it literally drives me crazy. Neurologist sent me for an MRI and found a 9.34mm pineal cyst, but tells me theyre asymptomatic (despite the thousands of people online who complain about similar symptoms) unless they compress on surrounding parts of the brain. Over the last few months Ive noticed frequent stiff necks and headaches, numbness on my forehead and pressure on the front of my head. Sometimes I wake up in the middle of the night with pounding headaches for no reason! Then on a facebook group for pineal cyst sufferers, I was explaining my symptoms and a woman said to look into dysautomia.. so I did. And I came across POTS. I realized a little while ago that when I get out of bed in the morning, my heart starts pounding. but my breathing doesnt increase. and when I get in the shower, I see flashing spots against the white shower walls for a few minutes everyday. I also know that sometimes when i get up I start to blackout visually like Im about to hit the floor... I honestly think I might have POTS. My doctor started me on Wellbutrin (SNRI) on oct 4th and I stopped taking it on nov 7th because it was making even more spaced out and forgetful. I caught a cold at work this week and have felt HORRIBLE the last 2 days.. I read online that POTS symptoms intensify when you are sick.. not sure if this is true but my heart has randomly been pounding out of my chest, or "tachy" as its called, all day and ive been sitting on the couch on my laptop with an occasional getting up for a drink or to go to the bathroom and I am so dizzy when I stand up. this is miserable. and ive drank about a gallon of water today. I read some of the side effects of wellbutrin which can have some POTS symptoms.. but the dizziness/mind fog/random heart palpaltations have been going on for over a year now..xjennabennax416https://www.blogger.com/profile/16499795421837051434noreply@blogger.comtag:blogger.com,1999:blog-7647112008052174649.post-47338072554744117552013-02-05T23:35:28.670-05:002013-02-05T23:35:28.670-05:00I think this is a great page to get more informati...I think this is a great page to get more information about POTS, and to help people see that you can still live your live with this disorder. I have POTS, and Ulcerative Colitis, so I know times can be hard but after reading this it makes me a little more hopeful that things will get betterCourtneynoreply@blogger.comtag:blogger.com,1999:blog-7647112008052174649.post-34345948189442989842011-10-13T11:14:54.104-04:002011-10-13T11:14:54.104-04:00This blog is so inspirational for me. I have POTS ...This blog is so inspirational for me. I have POTS and EDS and it gets really difficult sometimes to remain positive. This blog has helped me regain my focus and optimism and I greatly needed and appreciate that. :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7647112008052174649.post-68419422136748781962011-04-29T01:15:38.547-04:002011-04-29T01:15:38.547-04:00Sure - one of the more active Facebook POTS groups...Sure - one of the more active Facebook POTS groups is called "POTSrecovery.com" It is the Facebook group started by the same woman who runs the excellent POTSrecovery.com blog.<br /><br />Here are a few other Facebook pages about POTS:<br />Dysautonomia: Postural Orthostatic Tachycardia Syndrome (POTS)<br /><br />The Dysautonomia Girl<br /><br />Find A Cure For Dysautonomia<br /><br />Change in Life with Postural Orthostatic Tachycardia Syndrome<br /><br />The Faces of Dysautonomia<br /><br />Postural orthostatic tachycardia syndrome (an "interest" page that you can "like")POTSgrrlhttps://www.blogger.com/profile/00965527248154225467noreply@blogger.comtag:blogger.com,1999:blog-7647112008052174649.post-36246488102633310282011-04-28T16:13:57.727-04:002011-04-28T16:13:57.727-04:00I can't seem to find any POTS groups on facebo...I can't seem to find any POTS groups on facebook. Mind sharing the links/names?Becca Matherlynoreply@blogger.com