tag:blogger.com,1999:blog-7647112008052174649.post6013683711594152574..comments2024-02-24T20:45:18.066-05:00Comments on POTSgrrl: POTS, Lyme and Mycoplasma InfectionsUnknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7647112008052174649.post-61187818740262176212011-12-12T22:27:53.952-05:002011-12-12T22:27:53.952-05:00I was having some POTS like symptoms and came up p...I was having some POTS like symptoms and came up positive for Lyme disease. After the diagnosis I was given the normal 3 weeks of antibiotics. My symptoms continued and new symptoms would come and go. <br />My next step was to the infectious disease doctor. He took my blood and tested for an exhaustive list of infectious diseases. Everything, including Lyme, came back negative. The doctor explained that, as he had expected, I didn't and never did have Lyme. He said a false positive Lyme test was very common and there was nothing more he could do for me. <br />I was having many symptoms, including POTS, and new ones were popping up all the time. I looked into Lyme Literate Medical Doctors. The doctor explained that the Lyme tests currently used were not as reliable as most doctors believed. The LLMD believed according to my symptoms that I had chronic Lyme. I encourage you to get a second opinion from and LLMD. I believe that her diagnosis is correct. I am perusing the LLMD treatments. It is 18 months of oral antibiotics. I am not even one month in and am unable to work and take proper care of my family. I believe, at least for now, that am on the right track. I hope you find the answers you are looking for. <br />So the moral to my story is that the infection you may have could still be Lyme.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7647112008052174649.post-85050171305177060312011-07-13T13:22:27.510-04:002011-07-13T13:22:27.510-04:00Well, I'm not a doctor and if you are still no...Well, I'm not a doctor and if you are still not feeling right, I think you should see an infectious disease specialist. If your regular doctor is ignoring your concerns, maybe you should get a second opinion from another doctor with expertise in this area. <br /><br />Did you have an antibody test before treatment? Have you had a follow up one to see if the antibody levels have gone down?<br /><br />As far as my unofficial advice goes, do you know what type of mycoplasma you had? Was it just in your lungs? Did you take any antibiotics to get rid of the infeciton? If so, what kind, what dose and for how long? I only ask that because the first time around, I wasn't given a long enough dose of medicine, so we never really got rid of the infection. I have been told since that Doxycycline for at least 10 days, maybe longer is what is needed to get rid of it.<br /><br />I have read up on Mycoplasma pneumoniae bacteria and there seems to be much debate about this little bug. Millions of people have been infected by this pathogen, which is fairly common, but they are not all walking around sick for the rest of their lives. Maybe some people have a harder time fighting off the infection? Maybe some people have it go dormant and return again when their body is under physical stress? I really don't know. I hope you follow up with a good doctor and get some answers.POTSgrrlhttps://www.blogger.com/profile/00965527248154225467noreply@blogger.comtag:blogger.com,1999:blog-7647112008052174649.post-83641393752621016902011-07-09T23:20:43.745-04:002011-07-09T23:20:43.745-04:00I had a mycoplasma infection a couple of months ag...I had a mycoplasma infection a couple of months ago and my lymph nodes never went away. Does this mean I still have the infection? I also still get hives and the occasional fever. I don't think you will ever truly get rid of this bacteriaAnonymousnoreply@blogger.com